Cumbria SEND Information, Advice and Support Service (SENDIASS)

Cumbria SENDIASS provides free, impartial information, advice and support for children and young people with Special Educational Needs and Disabilities (SEND) and their parents or carers. The service helps families understand SEND processes, Education Health and Care Plans (EHCPs), school support and the services available across Cumbria.

Website: https://cumbriasendiass.co.uk
Facebook: https://www.facebook.com/CumbriaSENDIASS

The Oaklea Trust

The Oaklea Trust is a Kendal-based charity supporting children and adults with learning disabilities and autism across Cumbria and the North West. They offer family support, supported living, activity groups and opportunities for individuals with disabilities to build independence and confidence.

Website: https://www.oakleatrust.co.uk
Facebook: https://www.facebook.com/OakleaTrust

Carers Support South Lakes

Carers Support South Lakes provides advice, wellbeing support and practical help for unpaid carers in the South Lakeland area. They run peer support groups, workshops and events where carers can meet others, share experiences and access helpful guidance.

Website: https://www.carerssupportsouthlakes.org.uk
Facebook: https://www.facebook.com/CarersSupportSouthLakes

West Cumbria Carers

West Cumbria Carers supports unpaid carers across areas such as Whitehaven, Workington and surrounding communities. They provide information, emotional support, training and social opportunities to help carers manage their caring roles and maintain their wellbeing.

Website: https://www.westcumbriacarers.co.uk
Facebook: https://www.facebook.com/westcumbriacarers

Eden Carers

Eden Carers offers support for unpaid carers in the Eden Valley area, including Penrith and surrounding communities. They provide advice services, wellbeing support, training opportunities and regular meet-ups where carers can connect with others.

Website: https://www.edencarers.org.uk
Facebook: https://www.facebook.com/EdenCarers

Action for Children – Cumbria Disability and Short Breaks Services

Action for Children delivers services across Cumbria that support children and young people with disabilities and their families. Their programmes include activity sessions, short breaks and family support designed to give children opportunities to socialise while providing parents with respite.

Website: https://www.actionforchildren.org.uk
Facebook: https://www.facebook.com/actionforchildren

Cumbria SEND Parent Carer Forum

Cumbria SEND Parent Carer Forum is a parent-led organisation supporting families of children and young people with SEND across Cumbria. The group hosts support sessions, information events and opportunities for parents to connect and share experiences.

Website: https://www.cumbriapcf.org.uk
Facebook: https://www.facebook.com/cumbriapcf

Carlisle Mencap Parent Support Group

Carlisle Mencap runs family support groups and community activities for children with disabilities and their families, providing a welcoming environment where parents can connect with others.

Website: https://www.carlislemencap.co.uk
Facebook: https://www.facebook.com/carlislemencap

Manchester

Talbot House Support Centre

Talbot House is a Manchester-based charity that supports parents and carers of children and adults with learning disabilities. The service offers one-to-one advice, emotional support, help with benefits, form filling and advocacy. They also provide social activities, training sessions and wellbeing events where carers can connect, share experiences and build supportive networks within the community.

Website: https://www.talbot-house.org.uk
Facebook: https://www.facebook.com/talbothouse
Email: admin@talbot-house.org.uk
Phone: 0161 203 4095

SPACE Group Manchester

The SPACE Group (Supporting Parents and Carers Endeavour) is a parent-led support network for families of children with Special Educational Needs and Disabilities (SEND). The group offers peer support, advice and regular meet-ups across Manchester where parents can connect and share experiences.

Facebook: https://www.facebook.com/groups/2684450931834173
Email: spacegroup@manchesterparentcarerforum.org.uk

Manchester Parent Carer Forum

Manchester Parent Carer Forum represents families of children aged 0–25 with SEND and works alongside health, education and local authority services to improve support for families. The forum regularly hosts information sessions, events and coffee mornings where parents can connect and access advice.

Website: https://manchesterparentcarerforum.org.uk

SEND Together (Wythenshawe)

SEND Together is a parent-led support group providing social sessions, workshops and family activities for parents and carers of children with additional needs.

Phone: 07591 078944
Email: SENDtogetherSG@gmail.com

Manchester Settlement SEND Parent Support

This community-based SEND parent group offers drop-in sessions where parents and carers can meet, share experiences and access support in a relaxed environment.

Facebook: https://www.facebook.com/manchestersettlement

Mindful Me SEND Coffee Morning

Mindful Me runs SEND coffee mornings where parents can speak with experienced SEND navigators and meet other families.

Phone: 07515 956623
Email: MindfulMe.Therapies@outlook.com

SEND Dads Society – Manchester

SEND Dads Society provides peer support specifically for fathers raising children with Special Educational Needs and Disabilities.

Phone: 07940 560655

Liverpool

LivPaC – Liverpool Parents and Carers

LivPaC is a parent-led organisation supporting families of children with SEND across Liverpool through support meetings, events and information sessions.

Website: https://www.livpac.org.uk
Facebook: https://www.facebook.com/LiverpoolParentsandCarers

ADDvanced Solutions Community Network

ADDvanced Solutions provides training programmes and peer support groups for parents of children with autism, ADHD and other neurodevelopmental conditions.

Website: https://www.addvancedsolutions.co.uk
Facebook: https://www.facebook.com/addvancedsolutions

Liverpool Carers Centre Parent Groups

Liverpool Carers Centre runs support groups and drop-in sessions for carers, including parents of disabled children.

Website: https://liverpoolcarerscentre.org.uk
Phone: 0151 705 2300

Lancashire

Bury2Gether

Bury2Gether is a parent-led SEND forum providing information sessions, community events and parent meet-ups.

Website: https://bury2gether.co.uk
Facebook: https://www.facebook.com/bury2gether

Rainbow Hub Parent Support

Rainbow Hub provides therapy services and parent support sessions for families of children with neurological conditions.

Website: https://www.rainbowhub.org
Facebook: https://www.facebook.com/rainbowhubcharity

Lancashire Parent Carer Forum

Lancashire Parent Carer Forum represents families of children with SEND and hosts parent meetings and consultation events.

Website: https://lancashireparentcarerforum.org.uk
Facebook: https://www.facebook.com/lancspcf

Lancashire SEND Information, Advice and Support Service (SENDIASS)

Lancashire SENDIASS provides free, confidential and impartial information, advice and support for children and young people with Special Educational Needs and Disabilities (SEND) and their families. The service helps parents understand SEND processes, Education Health and Care Plans (EHCPs) and how to access support within schools and local services.

Website: https://lancssendias.org.uk
Facebook: https://www.facebook.com/LancashireSENDIASS

SEND Family Voice Lancashire

SEND Family Voice Lancashire is a parent-carer forum representing families of children and young people with SEND across Lancashire. The forum works with local authorities and services to improve provision while also creating opportunities for parents to connect, share experiences and influence decisions affecting SEND families.

Website: https://www.sendfamilyvoice.org.uk
Facebook: https://www.facebook.com/sendfamilyvoice

Blackpool SEND Information, Advice and Support Service

Blackpool SENDIASS offers free, impartial advice and guidance for children and young people with SEND and their families in Blackpool. The service supports parents with understanding their rights, navigating EHCP processes and accessing local education and support services.

Website: https://www.blackpoolsendiass.org.uk
Facebook: https://www.facebook.com/BlackpoolSENDIASS

Carers Lancashire

Carers Lancashire provides support, advice and practical help for unpaid carers across Lancashire, including Blackpool and Preston. The organisation offers wellbeing support, information services and opportunities for carers to connect with others in similar situations.

Website: https://www.carerslancashire.org.uk
Facebook: https://www.facebook.com/CarersLancashire

Barnardo’s Lancashire SEND Support Services

Barnardo’s delivers a range of support services for children and families across Lancashire, including services for children with Special Educational Needs and Disabilities. Their programmes provide family support, advice and activities designed to support both children and parents.

Website: https://www.barnardos.org.uk
Facebook: https://www.facebook.com/barnardos

Children North East Parent Support

Children North East runs support programmes for families raising children with additional needs, including parent groups and community support services.

Website: https://www.children-ne.org.uk
Facebook: https://www.facebook.com/childrennortheast

North East and North Cumbria Parent Carer Forum Network

The North East and North Cumbria Parent Carer Forum Network connects parent carer forums across the region, supporting families of children and young people with Special Educational Needs and Disabilities (SEND). The network works with health, education and local authorities to ensure the voices of parent carers help shape services and support.

Website: https://www.nencpcf.org.uk
Facebook: https://www.facebook.com/NENCPCF

Newcastle Parent Carer Forum

Newcastle Parent Carer Forum is a parent-led organisation supporting families of children and young people with SEND across Newcastle. The forum offers peer support, information sessions and opportunities for parents to share experiences and influence local services.

Website: https://www.newcastlepcf.org.uk
Facebook: https://www.facebook.com/NewcastleParentCarerForum

Sunderland Parent Carer Forum

Sunderland Parent Carer Forum supports families of children and young people with Special Educational Needs and Disabilities in Sunderland. The organisation provides peer support, workshops and opportunities for parents to help shape local SEND services.

Website: https://www.sunderlandpcf.co.uk
Facebook: https://www.facebook.com/SunderlandParentCarerForum

Darlington Parent Carer Forum

Darlington Parent Carer Forum represents families of children and young people with SEND in Darlington. The forum provides information, support and opportunities for parents to connect with others while helping improve services for SEND families.

Website: https://www.darlingtonpcf.org.uk
Facebook: https://www.facebook.com/DarlingtonParentCarerForum

Northumberland SEND Information, Advice and Support Service (SENDIASS)

Northumberland SENDIASS offers free, impartial information, advice and support to children and young people with Special Educational Needs and Disabilities (SEND) and their families. The service helps parents understand their rights, navigate Education Health and Care Plan (EHCP) processes and access education and local support services.

Website: https://www.northumberlandsendiass.org.uk
Facebook: https://www.facebook.com/NorthumberlandSENDIASS

Leeds Parent Carer Forum

Leeds Parent Carer Forum is a parent-led organisation supporting families of children with Special Educational Needs and Disabilities (SEND) across Leeds. The forum offers peer support, information sessions and opportunities for parents to share experiences and help influence local SEND services.

Website: https://www.leedsparentcarerforum.co.uk
Facebook: https://www.facebook.com/leedsparentcarerforum

SNAPS Yorkshire

SNAPS provides physiotherapy support and social activities for children with additional needs across Yorkshire. The organisation also offers parent support networks where families can connect, share experiences and access guidance.

Website: https://www.snapsyorkshire.org
Facebook: https://www.facebook.com/SNAPSYorkshire

Parent Forum for Bradford and Airedale (PFBA)

PFBA is a parent-led forum representing families of children with SEND across Bradford and Airedale. The organisation hosts parent support meetings, information sessions and opportunities for families to share experiences and influence local services.

Website: https://www.pfba.org.uk
Facebook: https://www.facebook.com/PFBAforum

Sheffield Parent Carer Forum

Sheffield Parent Carer Forum supports families of children and young people with SEND across Sheffield. The organisation offers peer support, workshops and regular meetings where parents can connect and access advice.

Website: https://www.sheffieldparentcarerforum.org.uk
Facebook: https://www.facebook.com/SheffieldParentCarerForum

Paces Parent Support

Paces provides specialist support for children with neurological motor disorders. The organisation also offers parent support sessions where families can meet others, share experiences and access guidance.

Website: https://www.pacescharity.org.uk
Facebook: https://www.facebook.com/pacescharity

FISH – Families Information Service Hub (Hull)

FISH provides information and support for families of children with additional needs in Hull and East Yorkshire. The service helps parents connect with local support groups, services and resources available in their community.

Website: https://www.fish.hull.gov.uk

KIDS Hull Parent Support

KIDS runs support services and parent groups for families of disabled children, including community-based support in Hull and surrounding areas.

Website: https://www.kids.org.uk
Facebook: https://www.facebook.com/kidscharity

Yorkshire and Humber Parent Carer Forum Network

The Yorkshire and Humber Parent Carer Forum Network brings together parent carer forums from across the region. The network supports collaboration between families and local services, helping ensure the voices of parents of children with SEND are heard when shaping education, health and social care services.

Website: https://www.yhpcf.org.uk
Facebook: https://www.facebook.com/YHPCF

Barnsley Parent Carer Forum

Barnsley Parent Carer Forum is a parent-led organisation supporting families of children and young people with Special Educational Needs and Disabilities. The forum provides information, peer support and opportunities for parents to connect while working with local services to improve SEND provision.

Website: https://www.barnsleyparentcarerforum.co.uk
Facebook: https://www.facebook.com/BarnsleyParentCarerForum

Leeds SEND Information, Advice and Support Service (SENDIASS)

Leeds SENDIASS provides impartial advice and guidance for parents, carers and young people with SEND. The service helps families understand their rights, navigate Education Health and Care Plan (EHCP) processes and access support within schools and local services.

Website: https://www.leedssendiass.co.uk
Facebook: https://www.facebook.com/LeedsSENDIASS

Calderdale Parent Carer Forum

Calderdale Parent Carer Forum supports families of children and young people with SEND across Calderdale. The forum offers information, peer support and opportunities for parents to share experiences while working with local organisations to improve services.

Website: https://www.calderdaleparentcarerforum.co.uk
Facebook: https://www.facebook.com/CalderdaleParentCarerForum

KIDS Yorkshire SEND Services

KIDS provides a range of services for disabled children, young people and their families across Yorkshire. These include family support, short breaks, play and activity sessions and information services designed to support both children and their carers.

Website: https://www.kids.org.uk
Facebook: https://www.facebook.com/KIDScharity

West Midlands Parent Carer Forum Network

The West Midlands Parent Carer Forum Network connects parent carer forums across the region, supporting collaboration between families and local authorities. The network works to ensure the voices of parents of children with Special Educational Needs and Disabilities (SEND) are heard when shaping education, health and social care services.

Website: https://www.wmpcf.org.uk
Facebook: https://www.facebook.com/wmpcf

Birmingham Parent Carer Forum

Birmingham Parent Carer Forum is a parent-led organisation supporting families of children and young people with Special Educational Needs and Disabilities across Birmingham. The forum offers peer support, information events and opportunities for parents to share experiences and influence local services.

Website: https://www.birminghamparentcarerforum.org.uk
Facebook: https://www.facebook.com/BirminghamParentCarerForum

SEND Information, Advice and Support Service (SENDIASS) – Birmingham

Birmingham SENDIASS provides free, impartial information, advice and support for children and young people with SEND and their families. The service helps parents understand their rights, Education Health and Care Plan (EHCP) processes and how to access support in education and local services.

Website: https://www.birminghamsendiass.co.uk
Facebook: https://www.facebook.com/BirminghamSENDIASS

Coventry Parent Carer Forum

Coventry Parent Carer Forum supports families of children and young people with SEND across Coventry. The forum offers peer support groups, workshops and information events where parents can connect and share experiences while helping improve local services.

Website: https://www.coventryparentcarerforum.co.uk
Facebook: https://www.facebook.com/CoventryParentCarerForum

Sandwell Parents for Disabled Children

Sandwell Parents for Disabled Children is a charity supporting families of children and young people with disabilities. They provide advocacy, advice, support groups and activities for families across the Sandwell area.

Website: https://www.sp-dc.org
Facebook: https://www.facebook.com/SandwellParentsforDisabledChildren

Contact – West Midlands Family Support

Contact is a national charity supporting families with disabled children, with services available across the West Midlands. They provide information, guidance, family workshops and practical advice to help parents navigate SEND support and services.

Website: https://contact.org.uk
Facebook: https://www.facebook.com/contactfamilies

Forward Carers

Forward Carers supports carers across Birmingham, including parents caring for disabled children. The organisation provides information, guidance and wellbeing support to help carers manage their caring roles.

Website: https://forwardcarers.org.uk
Telephone: 0333 006 9711

Rainbow Parents Carers Forum

Rainbow Parents Carers Forum represents families of children with Special Educational Needs and Disabilities (SEND) across Nottinghamshire. The forum provides peer support, information sessions and opportunities for parents to share experiences while helping improve local services for SEND families.

Website: https://rainbowpcf.org.uk
Facebook: https://www.facebook.com/RainbowPCF

East Midlands Parent Carer Forum Network

The East Midlands Parent Carer Forum Network brings together parent carer forums across the region, supporting families of children and young people with SEND. The network works with local authorities and services to ensure the voices of parent carers help shape education, health and social care provision.

Website: https://www.em-pcf.org.uk
Facebook: https://www.facebook.com/empcfnetwork

Derbyshire Parent Carer Voice

Derbyshire Parent Carer Voice is a parent-led forum supporting families of children and young people with Special Educational Needs and Disabilities across Derbyshire. The forum offers peer support, information events and opportunities for parents to share their experiences and influence local SEND services.

Website: https://www.derbyshireparentcarervoice.org
Facebook: https://www.facebook.com/DerbyshireParentCarerVoice

Leicestershire Parent Carer Forum

Leicestershire Parent Carer Forum supports families of children and young people with SEND across the county. The forum provides information, peer support opportunities and works alongside local services to help improve support for SEND families.

Website: https://www.lpcf.co.uk
Facebook: https://www.facebook.com/LeicsPCF

Nottinghamshire SEND Information, Advice and Support Service (SENDIASS)

Ask Us Nottinghamshire is the SEND Information, Advice and Support Service for Nottinghamshire. The service provides free and impartial advice to parents, carers and young people about SEND support, education rights and Education Health and Care Plans (EHCPs).

Website: https://www.askusnotts.org.uk
Facebook: https://www.facebook.com/AskUsNotts

Northamptonshire Parent Forum Group

Northamptonshire Parent Forum Group is a parent-led organisation representing families of children and young people with SEND. The forum offers information sessions, peer support and opportunities for parents to contribute to improving local SEND services.

Website: https://www.northamptonshireparentforumgroup.org
Facebook: https://www.facebook.com/NorthamptonshireParentForumGroup

Bristol Parent Carers

Bristol Parent Carers supports families raising disabled children through events, parent meetings and support networks. The organisation also provides opportunities for parents to connect with others and share experiences.

Website: https://www.bristolparentcarers.org.uk
Facebook: https://www.facebook.com/BristolParentCarers

Devon Parent Carer Forum

Devon Parent Carer Forum represents families of children with Special Educational Needs and Disabilities (SEND) and runs meetings and events for parents across Devon. The forum offers peer support and opportunities for parents to influence local SEND services.

Website: https://devonpcf.org.uk
Facebook: https://www.facebook.com/devonpcf

Westbank Community Health Parent Groups

Westbank Community Health provides community-based support programmes including parent groups and wellbeing sessions for families of children with additional needs. Their services help parents connect with others and access local support.

Website: https://westbank.org.uk
Facebook: https://www.facebook.com/westbankcommunityhealth

South West Parent Carer Forum Network

The South West Parent Carer Forum Network connects parent carer forums across the South West region. The network supports collaboration between families and local authorities to ensure the voices of parents of children and young people with SEND are heard when shaping education, health and care services.

Website: https://www.swpcf.org.uk
Facebook: https://www.facebook.com/SWParentCarerForum

Plymouth Parent Carer Voice

Plymouth Parent Carer Voice represents families of children and young people with SEND across Plymouth. The forum provides support groups, information events and opportunities for parents to connect with others and help shape local services.

Website: https://www.plymouthpcv.org.uk
Facebook: https://www.facebook.com/PlymouthParentCarerVoice

Dorset Parent Carer Council

Dorset Parent Carer Council is a parent-led organisation supporting families of children and young people with SEND across Dorset. The council provides peer support, information events and opportunities for parents to share their experiences and influence services for SEND families.

Website: https://www.dorsetparentcarercouncil.co.uk
Facebook: https://www.facebook.com/DorsetParentCarerCouncil

Devon SEND Information, Advice and Support (SENDIASS)

Devon SENDIASS offers free, impartial information, advice and support for children and young people with Special Educational Needs and Disabilities (SEND) and their families. The service helps parents understand their rights, navigate Education Health and Care Plan (EHCP) processes and access education and local support services.

Website: https://devonsendiass.org.uk
Facebook: https://www.facebook.com/DevonSENDIASS

South East Parent Carer Forum Network

The South East Parent Carer Forum Network connects parent carer forums across the South East region. The network works with families, local authorities and health services to ensure the voices of parents of children and young people with Special Educational Needs and Disabilities (SEND) help shape local education, health and care provision.

Website: https://www.sepcf.org.uk
Facebook: https://www.facebook.com/SEParentCarerForum

Kent Parent Carer Forum

Kent Parent Carer Forum is a parent-led organisation supporting families of children and young people with Special Educational Needs and Disabilities across Kent. The forum provides peer support, information sessions and opportunities for parents to share experiences and influence local services.

Website: https://www.kentpcf.org.uk
Facebook: https://www.facebook.com/KentParentCarerForum

Brighton & Hove Parent Carers’ Council

Brighton & Hove Parent Carers’ Council represents families of children and young people with SEND across Brighton and Hove. The organisation offers peer support, workshops and opportunities for parents to contribute to improving local SEND services.

Website: https://www.pacc.org.uk
Facebook: https://www.facebook.com/BrightonPaCC

Surrey SEND Information, Advice and Support Service (SENDIASS)

Surrey SENDIASS provides free and impartial information, advice and support to children and young people with SEND and their families. The service helps parents understand SEND processes, education rights and access support within schools and local services.

Website: https://www.surreysendiass.co.uk
Facebook: https://www.facebook.com/SurreySENDIASS

Hampshire Parent Carer Network

Hampshire Parent Carer Network is a parent-led organisation supporting families of children and young people with SEND across Hampshire. The network offers peer support, information events and opportunities for parents to share experiences while helping shape local services.

Website: https://www.hpcn.org.uk
Facebook: https://www.facebook.com/HampshireParentCarerNetwork

Parents and Carers Together Kent (PACT)

PACT supports families raising children with Special Educational Needs and Disabilities in Kent through parent networks, events and consultation meetings.

Website: https://www.pactkent.org.uk
Facebook: https://www.facebook.com/pactkent

Kent Autistic Trust Parent Groups

The Kent Autistic Trust provides support services and family groups for parents of autistic children, offering guidance, peer support and opportunities for families to connect.

Website: https://www.kentautistictrust.org
Facebook: https://www.facebook.com/kentautistictrust

East of England Parent Carer Forum Network

The East of England Parent Carer Forum Network connects parent carer forums across the region, helping families of children and young people with Special Educational Needs and Disabilities (SEND) have their voices heard. The network works alongside local authorities and health services to help improve support and services for SEND families.

Website: https://www.eepcf.org.uk
Facebook: https://www.facebook.com/EastofEnglandPCF

Essex Family Forum

Essex Family Forum is a parent-led organisation supporting families of children and young people with Special Educational Needs and Disabilities across Essex. The forum provides peer support, information sessions and opportunities for parents to share experiences and influence local SEND services.

Website: https://www.essexfamilyforum.org
Facebook: https://www.facebook.com/EssexFamilyForum

Norfolk Parent Carer Forum

Norfolk Parent Carer Forum supports families of children and young people with SEND across Norfolk. The organisation offers peer support, information events and opportunities for parents to help shape services for SEND families.

Website: https://www.norfolkpcf.org.uk
Facebook: https://www.facebook.com/NorfolkParentCarerForum

Suffolk Parent Carer Network

Suffolk Parent Carer Network is a parent-led organisation representing families of children and young people with SEND across Suffolk. The network provides information, peer support and opportunities for parents to share experiences and influence local services.

Website: https://www.suffolkpcn.co.uk
Facebook: https://www.facebook.com/SuffolkPCN

Hertfordshire SEND Information, Advice and Support Service (SENDIASS)

Hertfordshire SENDIASS provides free, confidential and impartial information, advice and support for children and young people with SEND and their families. The service helps parents understand their rights, navigate Education Health and Care Plan (EHCP) processes and access education and local support services.

Website: https://www.hertssendiass.org.uk
Facebook: https://www.facebook.com/HertsSENDIASS

SNAP Charity (Essex)

SNAP Charity provides support services for families of children with additional needs, including parent support groups, information services and community activities for families across Essex.

Website: https://www.snapcharity.org
Facebook: https://www.facebook.com/snapcharity

Kith & Kids

Kith & Kids supports children and young people with learning disabilities and autism through youth groups, social clubs and family support. The organisation focuses on building friendships, independence and confidence for young people with SEND.

Website: https://www.kithandkids.org.uk
Facebook: https://www.facebook.com/kithandkids
Areas covered: Hackney, Tower Hamlets, Newham and wider East London.

Resources for Autism

Resources for Autism provides play sessions, family support, advice services and training for families of autistic children. Their programmes help parents better understand autism and access local support.

Website: https://www.resourcesforautism.org.uk
Facebook: https://www.facebook.com/resourcesforautism
Areas covered: Richmond, Kingston, Hounslow, Hillingdon and wider West London.

Ambitious about Autism

Ambitious about Autism supports autistic children and young people through specialist education, training and family resources. The charity works to improve opportunities and independence for autistic individuals.

Website: https://www.ambitiousaboutautism.org.uk
Facebook: https://www.facebook.com/AmbitiousaboutAutism
Areas covered: London-wide support with services based in Haringey.

KIDS London

KIDS provides support services for disabled children, young people and their families. Their services include short breaks, youth groups, family support and play schemes designed to help children develop skills and confidence.

Website: https://www.kids.org.uk
Facebook: https://www.facebook.com/KIDScharity
Areas covered: Multiple London boroughs including Westminster, Camden, Islington and surrounding areas.

Richard House Children’s Hospice

Richard House provides hospice care, respite services and family support for children with life-limiting or complex health conditions. The charity supports families both at the hospice and in their homes.

Website: https://www.richardhouse.org.uk
Facebook: https://www.facebook.com/richardhousechildrenshospice
Areas covered: East London including Newham, Barking & Dagenham, Redbridge, Havering and Tower Hamlets.

Rainbow Trust Children’s Charity

Rainbow Trust provides emotional and practical support for families who have a child with a serious illness or disability. Family support workers assist with hospital visits, emotional wellbeing and practical support.

Website: https://www.rainbowtrust.org.uk
Facebook: https://www.facebook.com/RainbowTrustCC
Areas covered: London and South East England.

Sibs (Support for Siblings of Disabled Children)

Sibs supports siblings of disabled children and young people through information, support groups and resources designed to help siblings understand and cope with their experiences.

Website: https://www.sibs.org.uk
Facebook: https://www.facebook.com/sibscharity
Areas covered: London and nationwide support.

Afasic

Afasic supports children and young people with speech and language difficulties and their families. They provide resources, support networks and guidance for parents navigating education and communication support.

Website: https://www.afasic.org.uk
Facebook: https://www.facebook.com/AfasicCharity
Areas covered: London and nationwide support services.

Tower Hamlets Parent Carer Forum

Tower Hamlets Parent Carer Forum runs coffee mornings, workshops and support events for parents of children with SEND. The forum provides peer support and opportunities for families to connect and share experiences.

Website: https://towerhamletsparentcarerforum.org.uk
Facebook: https://www.facebook.com/thparentcarerforum

Hackney SEND Parent Carer Forum

Hackney SEND Parent Carer Forum provides advocacy, peer support and events for families navigating SEND services. The forum also works with local services to help improve support for SEND families.

Website: https://www.hackneysendpcf.co.uk
Facebook: https://www.facebook.com/hackneysendpcf

Little Village

Little Village supports families with young children by providing essential items such as clothing, equipment and toys through their baby bank network. Many families supported include those raising children with additional needs.

Website: https://www.littlevillagehq.org
Facebook: https://www.facebook.com/littlevillagehq
Areas covered: Camden, Brent, Southwark, Wandsworth and wider London.

SNAP Cymru

SNAP Cymru provides free, independent advice and support for children and young people with Special Educational Needs and Disabilities (SEND) and their families. They help parents understand education rights, Additional Learning Needs (ALN) processes and access appropriate support.

Website: https://www.snapcymru.org
Facebook: https://www.facebook.com/snapcymru
Areas covered: All of Wales.

Contact Cymru

Contact Cymru supports families with disabled children through advice, guidance and parent workshops. They help families navigate education, benefits and support services while connecting parents with local networks.

Website: https://contact.org.uk/about-contact/contact-cymru/
Facebook: https://www.facebook.com/contactfamilies
Areas covered: Wales-wide support.

Cerebra

Cerebra is a charity dedicated to supporting children with brain conditions and their families. They offer research-backed information, legal advice services and practical resources for parents.

Website: https://www.cerebra.org.uk
Facebook: https://www.facebook.com/cerebracharity
Areas covered: Wales and UK-wide support.

National Autistic Society Cymru

The National Autistic Society Cymru provides support, information and advocacy for autistic people and their families. Services include advice, training and local support networks.

Website: https://www.autism.org.uk
Facebook: https://www.facebook.com/NationalAutisticSociety
Areas covered: Across Wales.

Ty Hafan Children’s Hospice

Ty Hafan provides hospice care and family support for children with life-limiting conditions. Services include respite care, emotional support and specialist nursing care for families.

Website: https://www.tyhafan.org
Facebook: https://www.facebook.com/TyHafan
Areas covered: South and West Wales.

Ty Gobaith (Hope House Children’s Hospice)

Ty Gobaith offers hospice care and family support services for children with life-limiting conditions. The charity provides respite care, emotional support and practical help for families.

Website: https://www.hopehouse.org.uk
Facebook: https://www.facebook.com/hopehousekids
Areas covered: North Wales and surrounding areas.

Action for Children – Wales Services

Action for Children runs a range of family support services across Wales, including programmes supporting children with disabilities and additional needs. They provide family support, wellbeing services and community activities.

Website: https://www.actionforchildren.org.uk
Facebook: https://www.facebook.com/actionforchildren
Areas covered: Services delivered across Wales.

Cardiff and Vale Parents Federation

Cardiff and Vale Parents Federation is a parent-led organisation supporting families raising disabled children in Cardiff and the Vale of Glamorgan. The organisation offers advice, peer support and opportunities for parents to connect with others.

Website: https://parentsfed.org
Telephone: 02920 565917
Facebook: https://www.facebook.com/cvparentsfed

Home-Start Cymru

Home-Start Cymru supports families with young children through volunteer home-visiting services, family groups and parenting support. The charity works to help parents build confidence and create stable, supportive home environments for children.

Website: https://www.homestartcymru.org.uk
Facebook: https://www.facebook.com/HomeStartCymru
Areas covered: Services delivered across Wales through local projects in areas such as Ceredigion, Conwy, Flintshire and Wrexham.

Learning Disability Wales

Learning Disability Wales works with people with learning disabilities, families and organisations to improve services and opportunities across Wales. The charity promotes inclusion, supports community programmes and advocates for better support services.

Website: https://www.ldw.org.uk
Facebook: https://www.facebook.com/LearningDisabilityWales
Areas covered: Wales-wide support and advocacy services.

Disability Advice Project (DAP)

The Disability Advice Project provides independent advice and support for people with long-term health conditions, disabilities and their carers. Services include guidance on welfare rights, benefits and care support to help families access the help they are entitled to.

Website: https://www.dapwales.org.uk
Areas covered: South Wales including Cardiff and the Vale of Glamorgan.

Innovate Trust

Innovate Trust supports people with learning disabilities and other additional needs through supported living services and community support programmes. The charity helps individuals live independently while accessing education, employment and social opportunities.

Website: https://www.innovate-trust.org.uk
Facebook: https://www.facebook.com/InnovateTrust
Areas covered: South East Wales including Cardiff, Vale of Glamorgan and Rhondda Cynon Taf.

North Wales Society for the Blind

The North Wales Society for the Blind provides practical support, advice and activities for blind and partially sighted children and adults. The organisation helps families access resources, social opportunities and specialist support.

Website: https://www.nwsb.org.uk
Areas covered: North Wales including Conwy, Gwynedd, Anglesey and Denbighshire.

Guide Dogs Cymru

Guide Dogs Cymru supports people with sight loss by providing guide dogs, mobility training, family services and community programmes. They also run activities and advice services for children and families affected by visual impairment.

Website: https://www.guidedogs.org.uk
Areas covered: Services delivered across Wales.

Swansea Parent Carer Forum

Swansea Parent Carer Forum supports families of children with additional needs and hosts events where parents can meet, share experiences and access support.

Website: https://www.swanseapcf.org.uk
Facebook: https://www.facebook.com/swanseapcf

Enquire – The Scottish Advice Service for Additional Support for Learning

Enquire provides independent advice and information for parents and carers of children with Additional Support Needs (ASN). They help families understand education rights, support plans and how to access appropriate support within schools.

Website: https://enquire.org.uk
Facebook: https://www.facebook.com/enquireadvice
Areas covered: Scotland-wide.

Children in Scotland

Children in Scotland works to improve the wellbeing of children and young people by influencing policy and supporting organisations working with families. They provide resources, research and programmes supporting children with additional needs.

Website: https://childreninscotland.org.uk
Facebook: https://www.facebook.com/childreninscotland
Areas covered: Scotland-wide.

National Autistic Society Scotland

The National Autistic Society Scotland provides support, information and services for autistic people and their families. Services include guidance on education, employment and accessing local support networks.

Website: https://www.autism.org.uk
Facebook: https://www.facebook.com/NationalAutisticSociety
Areas covered: Scotland-wide.

Enable Scotland

Enable Scotland supports people with learning disabilities and their families through advocacy, support services and community programmes. The organisation works to improve opportunities and independence for individuals with learning disabilities.

Website: https://www.enable.org.uk
Facebook: https://www.facebook.com/ENABLEGroup
Areas covered: Scotland-wide with services across multiple regions.

Contact Scotland for Families

Contact Scotland supports families with deaf children by providing information, advocacy and access to communication support. They help families access education and services while promoting inclusion for deaf children and young people.

Website: https://contactscotland-bsl.org
Facebook: https://www.facebook.com/contactscotlandbsl
Areas covered: Scotland-wide.

Kindred Advocacy

Kindred Advocacy provides information, advocacy and emotional support for families with children who have complex health needs or disabilities. Their services help families navigate health, education and social care systems.

Website: https://kindred-scotland.org
Facebook: https://www.facebook.com/KindredAdvocacy
Areas covered: Primarily Edinburgh and surrounding areas.

Scottish Commission for People with Learning Disabilities (SCLD)

SCLD works to improve the lives of people with learning disabilities through research, policy work and community programmes. They support organisations and families working to create inclusive communities.

Website: https://www.scld.org.uk
Facebook: https://www.facebook.com/SCLD1
Areas covered: Scotland-wide.

Capability Scotland

Capability Scotland supports disabled people and their families through care services, education programmes and community support. The charity focuses on helping individuals achieve independence and participate fully in their communities.

Website: https://www.capability.scot
Facebook: https://www.facebook.com/CapabilityScotland
Areas covered: Scotland-wide with services across several regions.

DIFFERabled Parent Support Network

DIFFERabled Parent Support Network is a peer support community connecting parents and carers of children with additional support needs. The group provides a space for families to share experiences, advice and support.

Facebook: https://www.facebook.com/groups/differabled
Areas covered: Glasgow and surrounding areas.

ARC Scotland (Association for Real Change)

ARC Scotland works to improve the lives of people with learning disabilities and additional support needs. They support families, influence policy and provide resources to help young people live independent and fulfilling lives.

Website: https://arcscotland.org.uk
Facebook: https://www.facebook.com/arcscotland
Areas covered: Scotland-wide.

Family Fund Scotland

Family Fund provides grants and financial support to families raising disabled or seriously ill children. Grants can help with equipment, technology and other items that improve quality of life for families.

Website: https://www.familyfund.org.uk
Facebook: https://www.facebook.com/familyfund
Areas covered: Scotland and UK-wide.

Autism Network Scotland

Autism Network Scotland works to connect autistic people, families and professionals to improve understanding and support across Scotland. They provide information, training and community resources.

Website: https://www.autismnetworkscotland.org.uk
Facebook: https://www.facebook.com/autismnetworkscotland
Areas covered: Scotland-wide.

Glasgow Disability Alliance

Glasgow Disability Alliance supports disabled people and their families through advice, advocacy and community programmes. They help individuals access services and opportunities while promoting inclusion.

Website: https://gda.scot
Facebook: https://www.facebook.com/GlasgowDisabilityAlliance
Areas covered: Glasgow and surrounding areas.

Cerebral Palsy Scotland

Cerebral Palsy Scotland provides specialist therapy, advice and support for children and adults with cerebral palsy. Their services aim to improve mobility, independence and wellbeing.

Website: https://cerebralpalsyscotland.org.uk
Facebook: https://www.facebook.com/cerebralpalsyscotland
Areas covered: Scotland-wide with services based in Glasgow.

Down’s Syndrome Scotland

Down’s Syndrome Scotland supports individuals with Down’s syndrome and their families through information, training, advocacy and community support programmes.

Website: https://www.dsscotland.org.uk
Facebook: https://www.facebook.com/dsscotland
Areas covered: Scotland-wide.

Mindroom

Mindroom provides information and advice for families of children and young people with learning differences and neurodivergence. The organisation helps families navigate education systems and access support.

Website: https://www.mindroom.org
Facebook: https://www.facebook.com/mindroominfo
Areas covered: Scotland-wide.

Take a Break Scotland

Take a Break Scotland provides grants to families of disabled children and young people so they can take short breaks together. The programme aims to improve wellbeing for both children and their carers.

Website: https://takeabreakscotland.org.uk
Facebook: https://www.facebook.com/TakeABreakScotland
Areas covered: Scotland-wide.

Edinburgh Carers Council

Edinburgh Carers Council supports carers, including parents of disabled children, and hosts meetings where families can connect, share experiences and access support.

Website: https://www.edinburghcarerscouncil.co.uk
Facebook: https://www.facebook.com/edinburghcarerscouncil
Areas covered: Edinburgh and surrounding areas.

Autism NI

One of the main autism charities in Northern Ireland

Supports 35,000+ autistic people and their families

Services include:

Parent support groups

Autism helpline

Early intervention programmes

Training for parents and schools (Family Fund)

Sólás Belfast

Charity supporting children and young people with additional needs

Helps families across Northern Ireland

Provides:

Early intervention programmes

Social development clubs

Parent support

Educational support programmes (solasbt7.com)

Positive Futures

Charity supporting people with learning disabilities, autism and brain injury

Services include:

Support for children and families

Community programmes

Social inclusion activities (positive-futures.net)

NOW Group

Social enterprise supporting people with learning difficulties and autism

Focus on skills, independence and employment support

Operates across Northern Ireland and Ireland (nowgroup)

Cedar Foundation

Supports people with disability, autism and brain injury

Services include:

Family support

Living support services

Community inclusion programmes (The Cedar Foundation)

Autism Initiatives

Long-established autism charity operating in Northern Ireland and the UK

Provides:

Residential services

Community support

education and life skills programmes (Autism Initiatives)

Praxis Care

Charity supporting people with learning disabilities, autism and mental health needs

Provides:

Residential support

Day programmes

carer advocacy services (Wikipedia)

Middletown Centre for Autism

Provides training and guidance for parents, teachers and professionals

Offers specialist autism training programmes across Ireland and Northern Ireland (middletownautism.com)

Family Support NI

Website: https://www.familysupportni.gov.uk
Telephone: 0808 808 3555

Family Support NI helps connect families raising disabled children with local support groups and services.

The National Autistic Society

One of the leading autism charities in the UK

Supports autistic children, adults and their families nationwide

Services include:

Autism helpline and advice service
Parent support and guidance
Education resources and training
Campaigning for improved autism services

Mencap

National charity supporting people with learning disabilities and their families

Works across the UK to promote inclusion and independence

Services include:

Family advice and support
Community programmes
Advocacy for disability rights
Information and resources for parents

Contact

Charity dedicated to supporting families with disabled children

Provides guidance, emotional support and practical help for parents across the UK

Services include:

Parent helpline
Workshops and training for families
Advice on benefits and financial support
Peer support groups for parents

Family Fund

UK charity providing financial support to families raising disabled or seriously ill children

Helps families facing additional costs related to disability

Services include:

Grants for essential equipment
Technology and sensory equipment support
Family wellbeing grants
Advice for parents and carers

IPSEA (Independent Provider of Special Education Advice)

National charity offering legal advice and support on special educational needs law

Supports families navigating the education system in England and Wales

Services include:

Free SEND legal advice
Support with EHCP applications
Tribunal support for parents
Guidance on education rights

SOS!SEN

Charity helping parents resolve special educational needs issues with schools and local authorities

Provides support for families navigating SEND education challenges

Services include:

Free advice service
EHCP guidance
Workshops for parents
Education advocacy support

Kids

Charity supporting disabled children and young people

Works with families across the UK to improve independence and wellbeing

Services include:

Short break and respite services
Youth and social clubs
Family support programmes
Specialist play and development services

Scope

National disability equality charity supporting disabled people and their families

Works to create a fair and inclusive society

Services include:

Disability advice helpline
Benefits and financial guidance
Family support services
Advocacy for disability rights

Down’s Syndrome Association

Charity supporting people with Down syndrome and their families across the UK

Provides information and advocacy to improve opportunities and inclusion

Services include:

Parent support networks
Education resources
Health and development guidance
Advocacy for inclusive education

The Challenging Behaviour Foundation

Charity supporting families caring for children with severe learning disabilities and behaviours that challenge

Provides specialist guidance and resources

Services include:

Family support networks
Training for parents and carers
Behaviour guidance resources
Advocacy for improved support services

Newlife the Charity for Disabled Children

National charity supporting disabled and terminally ill children

Provides practical help and specialist equipment

Services include:

Emergency equipment loans
Grants for specialist equipment
Nurse helpline for families
Support for children with complex needs

WellChild

National charity helping seriously ill children and their families

Focuses on improving care and support at home

Services include:

Specialist children’s nurses
Family support programmes
Practical help for home care
Parent advice and guidance